I talked to Joe about the time he spent documenting the Benedicts’ quest to help Sabrina this paragraph. He visited his family and kept in touch for many months. He watches and listens as Sabrina’s parents manage daily turmoil and breakups that have become difficult, even dangerous, to deal with, as she grows bigger and stronger than either of them. last name.
The most revealing thing about family situation?
What really struck me is that there are hundreds of families like the Benedicts who are clearly in crisis, and they are surrounded by a host of organizations and agencies that know they are in crisis and agree that it needs to be done. something, but nothing happens for months and sometimes years.
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There’s this difference between what government agencies agree on and the family’s experience – grappling hours that last several times a week, sometimes at the side of the road, often involving multiple police officers, often in the freezing cold.
Why is the pandemic making things worse?
In March 2020, people’s routines and structures were falling apart – habits were even more important for children with autism. A son of a father in Brooklyn could not accept that the school was closed. Until his father drove him over and showed him that his school was not open, he would not continue for the day. This will repeat for several days.
So there’s always been more demand than residential schools that might be ideal for some kids with larger needs like Sabrina, but that’s become a bigger mismatch now, as there are Many families are in crisis. It took years, and in the case of the Benedicts, the father had to quit his job.
Is there a fear that involving the police could lead to children being shot?
There is definitely fear that the next encounter will be terrible, that she will be skewed or worse. In her case, it was a small town. The emergency medical staff informed the family. Sabrina will leave school and walk along a busy road. There is indeed a risk of being hit by a car.
What does society not understand about this issue?
Many children with autism do not experience these problems. But there are others in worse circumstances than the Benedicts. We really need more words in our language – for crisis, for family responsibilities. I wouldn’t understand the behavior and the family burden if I hadn’t seen it.
